Thursday, September 28, 2006

Update on Yvonne & Life in Saudi

I have been trying to find the time to write an update on my sister Yvonne, and my life in Saudi this year. It’s amazing how busy it gets once school starts. As I’m only in my second year of teaching, I’m going to use this as my excuse for my pathetic lack of communication.

Yvonne is now writing her updates on a blog that anyone can access. Check it out at: http://www.yvonski.blogspot.com/

Yvonne found out 5 weeks ago that she has a particular kind of breast cancer called “HER2 Positive.” Only about 20% of breast cancer patients have this very aggressive cancer. Sounds like bad news, but it’s actually good news because there is a fairly new drug on the market called Herceptin that targets this cancer specifically. They use it in combination with chemo and she has been receiving these chemo/Herceptin treatments for about 5 weeks now. I've been calling Von every week and she sounds pretty up. Walt told me that she seems to have more energy and doing things that she couldn't do a month ago. She also is able to sleep on her sides better now without as much pain. She hasn't felt any nausea, thank God, but her hair has started to fall out now and she’s considering shaving it this week and wearing a wig. She turned 50 on Sept 16. She told me that she used to dread the turning-50 thing, but now she's so grateful to be alive that the birthday party became a true celebration of life. It's interesting how your attitude can change with these circumstances.

I am mostly OK emotionally, but every once in a while something hits me out of the blue and I feel sad or scared again. Last week I found out that Herceptin is an outrageously expensive drug, so much so that women have taken the British health system to court for refusing to pay for it. I did some internet research on it and found one source that said the combination of Herceptin and chemo, doctors & hospital charges can add up to about $14,000 per weekly treatment! The article was several years old, so the cost may be different now. Yvonne's insurance has a deductible, and we’re still not sure how much they have to pay out of pocket before insurance picks up the rest. In January, the deductible starts over from scratch again. Some very generous gifts have come their way to help with these expenses so some of the financial stress has been relieved. The treatments are supposed to go for a year or more, and then Herceptin for the rest of her life if she survives.

While I was researching Herceptin, I came across some articles that spelled out the statistics on Herceptin. In the cancer world, it seems like a miracle drug. Her doctors have talked so optimistically about it that they have practically guaranteed that Von will survive. But that's not what the stats say. In reality, it sounds like Herceptin might change it from a 10-15% possibility of survival to a 50/50 chance. The family has all been saying that we're "cautiously optimistic" since the doctors are very optimistic. But when I read these stats, I felt this horrible dread again. 50/50 doesn't sound good to me. I cried again over that. I watched "Finding Neverland" on TV and bawled my eyes out when the mother died, thinking of Von. I look at her picture on my frig sometimes and start to cry. It comes & goes. Most of the time I'm OK and I'm feeling a little more optimistic since she's feeling a little less pain now. They won't do major tests on her for another month, so we are just waiting, waiting, and hoping for good news.

School is in full swing and already very busy. The one truly bright spot about teaching this year is my Yearbook class. It's my one creative outlet and the students in that class are amazing. It was a very difficult class that I inherited last year and I struggled the entire year to get work out of the kids. This year, I required students to fill out "job applications" to be in the class and there was a waiting list to get in. I have the cream of the crop. They are all dying to make the best yearbook ever. I actually feel excited walking into that class every day. The best part is that about two-thirds of the class are getting into photography and buying their own cameras. We had election speeches at assembly last week and since they are still in the learning stage, I didn't assign anyone to cover it but asked all who could get their hands on a camera to shoot. It was great, like the paparazzi had come to Dhahran High School. And the best part was that they were doing exactly what I told them to do...to not be afraid to get up in front of the crowd to get the right shot, to get close to the subject, to try different angles, to anticipate when something interesting was about to happen and find the right position for the best shot. I felt euphoric watching them.

It looks like I will be doing a lot of traveling this year (if Yvonne is improving and I stay here for the year). I am involved in the Model United Nations (MUN), which is a club at the school. MUN conferences for international schools are all in foreign countries. This year there are 3 conferences, one in Berlin, Cairo, and Qatar. I will co-lead the group going to Cairo. I'm also hoping to co-lead a student trip to Italy in February. Both those trips are paid for by the school. There are several vacations as well and most people leave the country as there is nothing to do here. I will wait for the results of the testing on Yvonne before I decide what to do for the winter break. My brother, Jon & Cher, have begged me to come to Uganda for Christmas, so that is a possibility if Yvonne is clearly improving. The cost to fly home is double that of a flight to Africa.

I feel like I have some good friends here and the atmosphere among the teachers this year is 100% better. I’m taking things one day at a time, making plans, but knowing that anything can change at a moment’s notice.

I’m sorry I haven’t answered every email personally. I will try to do better, but I have been so showered with love and support that I can’t keep up with the mail. Please know how much I appreciate every letter and love to hear from you. I’m still hoping to some day answer the over 100 emails in my inbox.

Love, LuAnne

My Sister, Yvonne


August, 2006
Some of you know my family well and others not at all. Some of you will receive duplicate emails from several members of our family if you are on all our email lists, so please bear with me if I try to explain things in detail here that you already know. Three weeks ago, my wonderful sister Yvonne told the family that she has metastasized breast cancer, which is life threatening. About 5 years ago, she first found out that she had breast cancer and over the next three years fought it with a mastectomy and chemo. At the end of that time, the PET scan showed no sign of cancer and she had breast reconstructive surgery 2 years ago. This summer Yvonne had reason to be concerned so she had several MRIs, CT scans and a PET scan which show that the cancer is extensive through her upper body skeletal frame: her sternum, rib cage, breasts, neck, spine and an 11 mm spot on her liver. The doctors want to start chemo immediately. He is not willing to give us a prognosis yet. They are waiting for a biopsy to see if they can start chemo next week with a new drug that is more cancer specific if she has the "right" kind of cancer. As you may know if you read any of the statistics, this is deadly serious. Without a miracle, she will die from this. There are exceptions, of course, but it’s rare.

Our family is extremely close but Yvonne is special. She is the angel of our family, always kind, always thinks of others first, lights up a room when she walks in. She’s 1 ½ years older and my best friend. She’s like my twin (the good twin) and my soul mate. I can’t imagine my life without her, nor can anyone in our family, especially her husband and children. We are all devastated.

Yvonne is in a lot of pain that comes and goes in its intensity. She’s sore all the time, but if she coughs, sneezes, hiccups or burps, the pain in her chest is excruciating. She’s terrified of getting a cold or the inevitable vomiting that usually comes with chemo. She’s having a hard time sleeping at night because she can’t sleep on either side for the pain in her shoulder on one side and the pain in her arm & breast on the other side. Lying on her back is uncomfortable because of the pressure in her chest from the cancer. She’s taken to sleeping on her back in bed half the night and in a recliner chair the other half. She can’t easily raise her arms past her shoulders so it’s difficult for her to wash her hair, lift anything, etc. She finds it difficult to drive long distances, put a seat belt on and off, etc. There’s more, but you get the idea. It seems to get worse by the day although at this moment, the pain has subsided some.

I have just come back to Saudi Arabia to finish the last year of my two year teaching contract. Leaving Yvonne at this time was extremely hard. My first reaction to the news was to write the principal and quit immediately, but I didn’t feel that I could leave the school three weeks before school started with no 11th grade English teacher. It’s not like the US where there are hundreds of qualified replacements. I’ve told the administration about my situation and that I’m coming back to teach, but my stay is uncertain and they should be looking for a replacement should I decide I need to leave. Since Yvonne has no prognosis yet (months or years), I have no idea how long I should stay. I will need a great deal of wisdom to know what to do. I do NOT want to come home to her death bed. I want to spend as much time with her as possible.

Yvonne is married (Walt) and has three kids: Miriam (24 and married), Hannah (18) and Megan (16). Megan left about 3 weeks ago to spend the year in the dorms at Faith Academy, the school in the Philippines that we all attended. She seems to be adjusting well and really happy. We didn’t want to drop this bomb on her until my brother Steve & his wife Mayen returned to Manila to be there when Yvonne & Walt called (which just took place). This will also be a tough decision to know when she should come home and pull her out of school and a situation that Yvonne felt was where God wanted her. She has bonded with the dorm girls, with Joel & Betsy Eyestone (for those of you who know them, they have been amazing in welcoming her into their lives), and her dorm parents are the best (Brian actually drove the get-away car when the dorm girls decided to raid the boys dorm). Several years ago, I asked Von & Walt to let me be the guardian of their girls should anything happen to them. I love them dearly, have a great relationship with them, and I am the closest female adult to them, besides their mom. Although they are older now, I know that losing your mother at any age is hard, and teenage years are no exception. I feel like I need to take on that mother role for them if Von dies. Yvonne said this means more to her than anything I could ever do.

I know that there’s a balance between facing reality and hoping for healing and a miracle from God. People die. That’s life, but I am still hoping. The whole family has felt such deep heartache the last three weeks and I have never cried so much. Mom has said that she doesn’t know if she can go on if she loses Von. Please pray for Yvonne and her family, wisdom for me to know what to do, and peace and comfort for all of us.
LuAnne